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Understanding and meeting information needs following unintentional injury: comparing the accounts of patients, carers and service providers
journal contribution
posted on 2015-10-09, 10:41 authored by Blerina Kellezi, Kate Beckett, Sarah Earthy, Jo BarnesJo Barnes, Jude Sleney, Julie Clarkson, Stephen Regel, Trevor Jones, Denise KendrickObjective: To explore information needs of unintentional injury patients and their carers over time,
across services, and how such needs are met from the perspectives of patients, carers and service
providers.
Methods: Qualitative nested study within a multi-centre longitudinal study quantifying psycho-social,
physical, occupational outcomes and service use and costs following a range of unintentional injuries.
Semi-structured interviews conducted with 45 patients during the first year post injury, 18 of their
carers and 40 providers of services.
Results: Patients and carers needed information about the nature and severity of injury, prognosis, selfmanagement
and further services. Information needs changed over time with the biggest difficulties
being during transfer from primary to secondary care. Barriers to information provision included service
providers’ time limitations and uncertainty around information provision, and patients’ reluctance to ask
for information or inability to process it. Suggested improvements included provision of reassurance as
well as factual information, information about further services, earlier follow-up, increased appointment
times and greater involvement of families where appropriate.
Conclusions: The information needs of patients and carers post injury change with time and there are a
number of ways to remove gaps and barriers in current provision to meet such needs.
Practice implications: Providing information on injury management, prognosis and available services
and reassurance at each stage of the recovery process in secondary care and when transferring to
primary care would be helpful for patients and carers. A follow-up contact soon after discharge and the
opportunity to ask questions could be beneficial. Better information about the patient’s needs and ways
they can help could help carers fulfil their caring role.
Funding
This research was funded by the National Institute for Health Research (NIHR) Collaboration for Leadership in Applied Health Research and Care for Nottinghamshire, Derbyshire and Lincolnshire (CLAHRC NDL).
History
School
- Design and Creative Arts
Department
- Design
Published in
INJURY-INTERNATIONAL JOURNAL OF THE CARE OF THE INJUREDVolume
46Issue
4Pages
564 - 571 (8)Citation
KELLEZI, B. ... et al, 2015. Understanding and meeting information needs following unintentional injury: comparing the accounts of patients, carers and service providers. Injury, 46 (4), pp. 564 - 571.Publisher
© ElsevierVersion
- VoR (Version of Record)
Publisher statement
This work is made available according to the conditions of the Creative Commons Attribution-NonCommercial-NoDerivatives 4.0 International (CC BY-NC-ND 4.0) licence. Full details of this licence are available at: https://creativecommons.org/licenses/by-nc-nd/4.0/Acceptance date
2014-11-29Publication date
2014-12-09Copyright date
2015Notes
This paper is closed access.ISSN
0020-1383Publisher version
Language
- en