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Understanding and meeting information needs following unintentional injury: comparing the accounts of patients, carers and service providers

journal contribution
posted on 2015-10-09, 10:41 authored by Blerina Kellezi, Kate Beckett, Sarah Earthy, Jo BarnesJo Barnes, Jude Sleney, Julie Clarkson, Stephen Regel, Trevor Jones, Denise Kendrick
Objective: To explore information needs of unintentional injury patients and their carers over time, across services, and how such needs are met from the perspectives of patients, carers and service providers. Methods: Qualitative nested study within a multi-centre longitudinal study quantifying psycho-social, physical, occupational outcomes and service use and costs following a range of unintentional injuries. Semi-structured interviews conducted with 45 patients during the first year post injury, 18 of their carers and 40 providers of services. Results: Patients and carers needed information about the nature and severity of injury, prognosis, selfmanagement and further services. Information needs changed over time with the biggest difficulties being during transfer from primary to secondary care. Barriers to information provision included service providers’ time limitations and uncertainty around information provision, and patients’ reluctance to ask for information or inability to process it. Suggested improvements included provision of reassurance as well as factual information, information about further services, earlier follow-up, increased appointment times and greater involvement of families where appropriate. Conclusions: The information needs of patients and carers post injury change with time and there are a number of ways to remove gaps and barriers in current provision to meet such needs. Practice implications: Providing information on injury management, prognosis and available services and reassurance at each stage of the recovery process in secondary care and when transferring to primary care would be helpful for patients and carers. A follow-up contact soon after discharge and the opportunity to ask questions could be beneficial. Better information about the patient’s needs and ways they can help could help carers fulfil their caring role.

Funding

This research was funded by the National Institute for Health Research (NIHR) Collaboration for Leadership in Applied Health Research and Care for Nottinghamshire, Derbyshire and Lincolnshire (CLAHRC NDL).

History

School

  • Design and Creative Arts

Department

  • Design

Published in

INJURY-INTERNATIONAL JOURNAL OF THE CARE OF THE INJURED

Volume

46

Issue

4

Pages

564 - 571 (8)

Citation

KELLEZI, B. ... et al, 2015. Understanding and meeting information needs following unintentional injury: comparing the accounts of patients, carers and service providers. Injury, 46 (4), pp. 564 - 571.

Publisher

© Elsevier

Version

  • VoR (Version of Record)

Publisher statement

This work is made available according to the conditions of the Creative Commons Attribution-NonCommercial-NoDerivatives 4.0 International (CC BY-NC-ND 4.0) licence. Full details of this licence are available at: https://creativecommons.org/licenses/by-nc-nd/4.0/

Acceptance date

2014-11-29

Publication date

2014-12-09

Copyright date

2015

Notes

This paper is closed access.

ISSN

0020-1383

Language

  • en

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