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Title: Beyond beliefs: risk assessment technologies shaping patients' experiences of heart disease prevention
Authors: Saukko, Paula
Farrimond, Hannah
Evans, Philip H.
Qureshi, Nadeem
Keywords: Heart disease
Risk
Primary prevention
Cholesterol
Statins
Formal tools
Protodisease
Issue Date: 2012
Publisher: Blackwell Publishing (© 2011 The Authors. Sociology of Health & Illness / © 2011 Foundation for the Sociology of Health & Illness/Blackwell Publishing Ltd.)
Citation: SAUKKO, P. ... et al, 2012. Beyond beliefs: risk assessment technologies shaping patients' experiences of heart disease prevention. Sociology of Health and Illness, 34 (4), pp.560-575.
Abstract: Social science research on lifestyle-related diseases typically focuses on patients' understandings and beliefs and takes the clinical risk for granted. We interviewed 30 healthy UK patients at high risk of heart disease, recruited from a family history trial at 2weeks and 6months after a discussion with a clinician about their risk, lifestyle and medications. The participants took four different paths: (i) pharmaceutical (most common, risk reduction with cholesterol lowering statins), (ii) mixed (statins and behaviour change), (iii) behavioural (behaviour change, focus on wellbeing) and (iv) 'lost' (no prevention, difficult social/personal circumstances). Drawing on Berg we argue that coronary heart disease (CHD) risk assessment technologies are formal tools that generate, rather than represent, high risk in a way that patients often experience lifestyle change as futile, because it rarely reduces their cholesterol to targets defined by the tools. We suggest social scientists studying incipient or 'proto-diseases', such as CHD risk, should not only focus on understandings but also investigate the technologies (and the associated guidelines, policies, clinical practice and pharmaceutical industry operations) that generate incipient diseases and patients' experiences of them. However, technologies do not determine experience and we also discuss elements that direct patients down other than the pharmaceutical path. © 2011 The Authors. Sociology of Health & Illness © 2011 Foundation for the Sociology of Health & Illness/Blackwell Publishing Ltd.
Description: This paper was accepted for publication in the journal "Sociology of Health and Illness" and the definitive version is available at: http://dx.doi.org/10.1111/j.1467-9566.2011.01406.x
Version: Accepted for publication
DOI: 10.1111/j.1467-9566.2011.01406.x
URI: https://dspace.lboro.ac.uk/2134/14274
Publisher Link: http://dx.doi.org/10.1111/j.1467-9566.2011.01406.x
ISSN: 0141-9889
Appears in Collections:Published Articles (Social Sciences)

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