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Title: Qualitative investigation of exercise perceptions and experiences in people with multiple sclerosis before, during, and after participation in a personally tailored exercise program
Authors: Crank, Helen
Carter, Anouska
Humphreys, Liam
Snowdon, Nicky
Daley, Amanda J.
Woodroofe, Nicola
Sharrack, Basil
Petty, Jane
Saxton, John M.
Keywords: Exercise
Multiple sclerosis
Qualitative research
Rehabilitation
Issue Date: 2017
Publisher: Elsevier © American Congress of Rehabilitation Medicine
Citation: CRANK, H. ... et al, 2017. Qualitative investigation of exercise perceptions and experiences in people with multiple sclerosis before, during, and after participation in a personally tailored exercise program. Archives of Physical Medicine and Rehabilitation, 98 (12), pp.2520-2525.
Abstract: Objective To undertake a qualitative investigation of exercise perceptions and experiences in people with multiple sclerosis (PwMS) before, during, and after participation in a personally tail ored program designed to promote long-term maintenance of self-directed exercise. Design Focus groups and semistructured telephone interviews. Setting University exercise science department close to the recruiting hospital. Participants PwMS (N=33; mean age ± SD, 47.6±7.9y). Interventions Participants were recruited after participation in a randomized controlled exercise trial; all had been allocated to a 12-week exercise program comprising supervised and self-directed exercise sessions. Main Outcome Measures Exercise perceptions and experiences before, during, and after participation in the program. Results Four themes emerged from the analysis: (1) the transition to inactivity; (2) lack of knowledge and confidence; (3) positive exercise experiences; and (4) perspectives on exercise adherence. Conclusions Lack of confidence and exercise knowledge, coupled with negative perceptions about physical capabilities after an MS diagnosis, are clear barriers to exercise participation in PwMS. These issues are not being adequately addressed as part of the health care pathway or in community settings. Perceptions of improved posture, ability to overcome everyday difficulties, acute mood enhancements during and after exercise, and increased opportunities for social interaction were among the reported benefits of exercise participation. Despite the provision of a personally tailored exercise plan and use of cognitive behavioral strategies, self-directed exercise continued to present challenges to PwMS, and the importance of seeking cost-effective ways to maintain motivational support was implicit in participant responses.
Description: This paper is closed access until 22nd June 2018.
Sponsor: UK Multiple Sclerosis Society: Project Grant 888/08.
Version: Accepted for publication
DOI: 10.1016/j.apmr.2017.05.022
URI: https://dspace.lboro.ac.uk/2134/32199
Publisher Link: https://doi.org/10.1016/j.apmr.2017.05.022
ISSN: 0003-9993
Appears in Collections:Closed Access (Sport, Exercise and Health Sciences)

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